Search Results - nicholas+johnson

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The Charcot-Marie-Tooth Disease Health Index (CMT-HI)

The CMT-Health Index (CMT-HI) is a disease-specific, patient-reported, outcome measure designed to reliably and responsively measure therapeutic benefit in Charcot-Marie-Tooth disease (CMT) clinical trials. The CMT-HI may also be used to measure overall patient health in a clinical setting. It covers the 18 areas of greatest importance to the adult...

Published: 8/14/2023 | Inventor(s): Chad Heatwole, David Herrmann, Nicholas Johnson

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Category(s): Copyright, Informatics, Research Tools

Congenital and Childhood Myotonic Dystrophy Research Survey: Instrument for Children Ages 5 to 7 (CCMD-HI 5-7)

This is a disease-specific Patient-reported outcome measure for patients with congenital, childhood-onset, or juvenile myotonic dystrophy type-1. This instrument was developed and validated through the outcome measures laboratory at the University of Rochester and based on original questions developed for adult myotonic dystrophy patients (also see...

Published: 8/14/2023 | Inventor(s): Chad Heatwole, Nicholas Johnson, Joanna Heatwole

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Category(s): Copyright, Informatics, Research Tools

Congenital and Childhood Myotonic Dystrophy Health Index: Instrument for Children Ages 8 to 11 (CCMD-HI 8-11)

Published: 8/14/2023 | Inventor(s): Chad Heatwole, Nicholas Johnson

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Category(s): Copyright, Informatics, Research Tools

Congenital and Childhood Myotonic Dystrophy Health Index: Instrument for Children Ages 12 to 17 (CCMD-HI 12-17)

This is a disease-specific patient-reported outcome measure for patients with congenital, childhood-onset, or juvenile myotonic dystrophy type-1. This instrument was developed and validated through the outcome measures laboratory at the University of Rochester and based on original questions developed for adult myotonic dystrophy patients (also see...

Published: 8/14/2023 | Inventor(s): Chad Heatwole, Nicholas Johnson

Keywords(s):

Category(s): Copyright, Informatics, Research Tools

Congenital and Childhood Myotonic Dystrophy Health Index: Parent Proxy Instrument (CCMD-HI Proxy)

This is a disease-specific proxy reported outcome measure for patient with congenital, childhood-onset, or juvenile myotonic dystrophy type-1. This instrument was developed and validated through the outcome measures laboratory at the University of Rochester and based on original questions developed for adult myotonic dystrophy patients (also see UR...

Published: 8/14/2023 | Inventor(s): Chad Heatwole, Nicholas Johnson

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